MTV’s True Life I’m an Albino Was Interesting for a Few Reasons

About 3 months ago I wrote this article about TLC’s Albino Island in AFRICA, that you can check out with this link here. So I decided to watch MTV’s True Life I’m an Albino this week to see how they tackled the issue. The interesting thing about both shows was the focus on young people who have albinism. By the way that phrase, “people who have albinism” seems a little less stigma inducing than flat out calling somebody an “albino.”


CLICK THIS IMAGE TO WATCH THE EPISODE

So MTV basically chose 3 people, and a fourth person was briefly part of the program since she was a twin of one of the main subjects. All the young people were about 17-21 so no big difference in age, but they were all on the brink of adulthood and pretty much about to step into a world outside the protection of home life. I don’t remember the order they were introduced, so I’ll just jump in first with the young lady.

Jennie is a girl who wants to be an actress, but she’s got a particular eye condition with her albinism called nystagamus that causes her eyes to be in a constant state of movement. On my other article I talk about the fact that bad eyesight is one of the other hardships.

In her case though this comes in direct conflict with the fact that a) she’s chosen an lifestyle where people are filming her and b) auditioning means 9 time out of 10 you’re going to get a script AT the audition and have to read it on the spot. Tough. In fact, this whole profession is going to be EXTREMELY difficult, since showbiz these days has pretty much degenerated into models who talk, instead of great performers who might happen to be attractive. In other words appearance is super important. If I knew her personally I would IMMEDIATELY advise her to start taking writing and film classes. Her best, most realistic, option would be to make her own films. Tell her own stories and Hollywood will come a knocking after a few Sundance standing ovations. Trust me on this. Because right now the media pretty much just sees the albino condition as comedy or odd/supernatural (Powder or The Da Vinci Code). I mean I love the Venture Brothers-but here’s a character from the show known as “White.”

At any rate she’s reasonably comfortable with herself and she’s got goals-so her LIFE prospects look pretty good-other than the career thing. Next up are 2 guys. Both with names that start with Z’s, so let’s see if I can get this right. One is a “white” kid and the other is “black.” You see why I put that in quotes right? In the albino world this is such a strange concept. I talk a little more about this in my TLC article.

Anyway the first one is Zack. Zack is black. But, so am I! Hahahaa. Here he is with his family.

In fact the biggest thing going on with Zack’s life IS he family, specifically his mother. The kid wants to drive. BAD. He’s an athletic guy, runs track and field, and has a nice group of friends. But he really wants to be mobile. But I think that is only a symptom. I think the root of the problem is that driving symbolizes normalcy for him. And the idea of NOT driving would definitely put in the “handicapped” barrel, and he does not want to in that category. And yet, his vision is pretty bad. Here is getting fitted for special glasses.

The last young person is Zane.


He has a twin sister who makes a brief appearance. She also has albinism and she does a bunch of things to hide that. And I think that’s only one of the issues that makes Zane’s story the most complex of all the stories on the show. So he’s got this twin right? And it began to occur to me how twins come up a few times in the albino world.

I mean who can forget those Albino Twins in the Matrix?

And what about those two that are always visiting Dirty Jobs?

But let’s get back to Zane. Zane not only plays football on his high school team, he’s been chosen to play college ball. This is a big deal for ANY kid, but obviously it’s even more of an accomplishment given what he had to overcome.

As I said his story is a little more complex, for instance, one of the most surprising things is he AND his mother thought that his condition was a result of his mother had done. And they were told by a counselor that it’s genetic. She has albinism also.

What’s most interesting to me?
I’ll tell you. By this people MTV, the focus is pretty much on American young people. And what I found striking about this episode is that ALL THREE of these kids had chosen a career or thing to pursue in life that’s very public. 2 athletes and an actress. One would THINK somebody like these kids would try to find a way to stay out of the limelight. But they’ve all chosen to do something that results in great public display and the scrutiny of others.

So it makes you wonder; has a lifetime of being looked at made them just choose to embrace that or is it simply young people doing what young people do. When I was that age I was very athletic and I was even on a team in school for a while. Outside of school I was a member of a skateboarding group. And I also chose to act in movies. So are they just doing what young people do? Interesting.

Another point of this article is this last thing that happens to Zane. He goes to a meeting for people with albinism and basically says that being there is the most comfortable he’s ever felt in his skin. So in my last article I mentioned how you could donate, in THIS one I strongly recommend that if you yourself have this condition get out and meet others. Or try to find that group that meets in Washington D. C. Or if you know somebody, particularly a young person, get them meeting other as SOON as possible. Don’t be alone in this. MTV also tends to make full episodes available ONLINE, but as of right now this one is NOT because it’s still brand new and they’re showing it on the station, but in the following weeks it probably will be.

For now I also advise reading up on the subject. Don’t be like Zane and his mother who were convinced they had done something wrong. Get accurate information with books like…

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My Shocking Story Albino Island on TLC is Sad, Sad, Sad

If PBS is the station of learning about other cultures. TLC has GOT to be the station of having other culture’s happenings disgust and freak us out. Or, if you consider Jon and Kate, it’s having our OWN culture disgust and freak us out. So tonight TLC hit us with My Shocking Story; Albino Island.

Albino Island

Turns out it’s primarily about Tanzania Africa, with cutaways to a summer camp here in America for albinos in Pennsylvania. Both groups are as far apart geographically as they are in terms of living conditions. You DO remember Tanzania right? Come on! Hemingway? Kilimanjaro? You know! This place—->

Tanzania

But first let me set the stage a little. Here on this blog I’ve written about a few of these TLC My Shocking Story episodes. The Woman with Giant Legs, Half Man Half Tree, The Man with No Face, and The Electric Humans. I swore off these shows, but I did see the tv guide listings for the Mermaid Girl and I think another one called the Spider People. So Why my return to expressing my thoughts on these shows? Well this little article is just a teeny tiny effort to get the word out about atrocities in Africa. There are literally an infinite number of unsolvable problems over there. And this little program’s focus on just one medical condition helps the human mind at least grasp one story that can help people see how misery ripple out. And by the program also doing a little comparin’ and contrastin’ with the same medical condition here in North America they do the classic “bringin’ it on home.” And yeah, it’s a little on the cliche side. But what else can be done? Everybody here is concerned with our new 10 percent unemployment rate, people can’t even begin to imagine decades of a 60 or 70 percent unemployment rate. So let’s take a look at the program…

Mary

We more or less begin with the story of two sisters (Shida and Semeni), a bunch of unnamed siblings and their mother Mary Mathias. The two girls are albinos in Tanzania, Africa.

albino sisters

The girls are teens and like most African girls living at a village level society need to do a good deal of manual labor. Obtaining water and firewood are a big part of that. Or course, it’s Africa, and that means INTENSE sunlight.

Shida Mathias Africa

Which is quite terrible for people with no pigmentation. After all, the reason “black people” are “black” is because it’s an evolutionary defense against tremendous sunlight. The darker you are the better you’re able to handle sunlight. Dark skin is still prone to things like sunburn and skin cancer just LESS prone. So these girls are up shit creek; they have the absolute worse kind of skin for that environment.

Mathias sister1Mathias sister2

Now speaking of genetic evolution, let’s get into that. The program introduces a professor whose name is Dr. Brilliant!

Doc Brilliant

So Doc Brilliant has this brilliant idea. That MAYBE albinism is connected to leprosy. Hmmmm? Now let me be a little upfront here. I’m not a professor. But I DO have a very expensive degree in Anthropology from Columbia and yeah, it was cultural anthro but I did my last year’s focus on physical anthro. And even before they said it on the program I knew that leprosy was a communicable/contagious disease not a genetic disorder like, say, Sickle Cell Anemia. And even though Sickle Cell is an awful disease it’s a development in African populations that, rightly so, been theorized as a natural combatant to Malaria. Malaria and things like Sleeping Sickness can be spread by the TseTse fly and populations with sickle shaped cells WILL have a shorter life expectancy, but they will survive Malaria.

So the brilliant Dr. Brilliant decides to do some investigation. He already knows that some 1 in 14,000 people in this part of Africa are albinos (God was it 1,400?). And albinism is a recessive trait, so he wants to compare the DNA of albinos to lepers. First he goes to visit Samuel Mluge who has a charity called Under The Same Sun.

Samuel

The charity is a where the kinda sad story gets REALLY sad. See, all the albinos have to live in the locked compound so they don’t get killed. That’s right. In this part of the world with one of the highest albino populations in the world they’re ostracized even more than normal society. AND the people have started to hunt them. AND CHOP THEIR LIMBS OFF for “witchcraft” ingredients.

Man, I love how for Native Americans (and pretty much EVERY village level culture) it’s “medicine man,” “healer” and “shaman” but for Africa…Not that I’m sticking up for the bad guys, but still; the show did itself a disservice by going that route. If it 1950, fine. But 2009? Really?

lockalbino kidsmore kidsprotected kids

Let’s talk a little about the physiological aspects

When I was younger I used to see albinos all the time. I rarely see them anymore. I’ve known black ones and white ones. The weird thing is how similar they look despite their ethnic background. In fact, it’s a great lesson in humanity to see people WITHOUT pigmentation-It’s a great reminder that we’re all humans and the skin tone is a ridiculous separation device. “Human” doesn’t mean some people are dogs and some people are rocks, and some people are trees. Human means 2 arms,  2 legs, a brain, some sex organs and upright walking.

Anyway in fact in my early college years a friend and I got enjoyment every single day from calling an albino guy we worked with “Al” and having him correct us every single time and say “My name is Lou, how do you guys forget every day?!” Hey, I never said I was a great guy, and I’ve grown. A little. But one of the things we noticed was how BAD his vision was. He used to read everything just like these guys.

bad vision

And in the program they talk about how aside from the susceptibility to skin cancer one of the biggest problems with albinism is vision.

braille

By the way, if you need glasses-do go online.

Online Glasses link 1 and Online Glasses link 2

I don’t want to spoil the show for people who haven’t seen it yet, so I wont reveal all the details, but I will continue with Dr. Brilliant’s next move. Which is that he then continues his journey to the leper village to collect DNA samples. I mean wow, now you’ve got to try to take in an entire OTHER group of sickly, destitute and unhappy people in the SAME area of the SAME country.

Selina

Her hands

decayed hands

Another resident

lady with leprosy

MY Crazy Theories

Hey Dr. Brilliant had a theory and he was wrong so I’M proposing a theory too. Why not? Ladies and gentlemen of the jury I put it to you that there MIGHT be a connection between albinism and the disease Michael Jackson had. The dreaded vitiligo. Think about it; Michal Jackson had depigmentation through vitiligo. And check this out, leprosy goes for the hands and feet first JUST like Michael Jackson. Did you know THAT was why he started wearing the glove?

Michael vitiligo

Just in CASE you think it’s a made up disease I encourage you to do an image search on google. Here’s a sample

severeDesiree_Vitiligo

They don’t even know what causes is. Can’t confirm if it’s purely genetic or if environment plays a factor. I also believe that ultimately albinism will be explained by a case of genetic drift. I put a wiki link in there for you guys. But similar to Tay-Sachs.

But Back to the Show

So, the “b story” of the episode is about Lee-Anne Thompson who’s from Canada and goes to an all albino camp.

lee anne

Obviously it’s in start contrast to what’s happening in Africa BUT keep in mind all those young people essentially live in isolation and they’ve got to spend the rest of their lives like that too. So no picnic for them either.

campgood times

In conclusion

The show doesn’t really offer any kind of resolution or avenue to help. The give the sisters some sunglasses and Doc Brilliant is the closing shot as if its all about HIM. Nice guy, but it really isn’t.

The sad part is that TLC could easily have closed the show with a  screen that said “If you’d like to help out go to this website…” But, because I’ve been at this for a while, I know about the super secret, hard to find BRITISH version of the TLC website, that actually does have a section dedicated My Shocking Story section.

In the meantime I found a link to the organization. And the image below links to the charity site.

under the same sun

And a GREAT personal website (from a web designer who should be kicking it up a notch!) about the history of albinism and lifestyle of the artist who created the site is…

The Golden Child.

Guess what I learned over there? Not only is my personal theory that albinism might be connected to vitiligo not an original idea, but the theory is over a hundred years old!

Professor Holloway

Professor Holloway

And hey, not that it’s related to anything, but the man who taught me physical anthropology was on Nova Nov. 3 (with a rerun on Nov. 16 talking about early humans. The program is called Becoming Human; First Steps. The Doc pops up every so often on these “early man” shows on PBS, TLC or Discovery. So let’s give him a round of applause too because I PROBABLY wouldn’t be taking the time to write pieces like this (when I could be focusing on making money) without him…

TLC Electric Human is a Story I Can Personally Relate to

I keep thinking I’m done watching these TLC “My Shocking Story” episodes-but I keep coming back. And then I write stories like my Half Man Half Tree story or my Woman with Giant Legs and Man with No Face stories. And I keep thinking I wont write another piece, but here I am! This thing about Electric Humans though really caught my attention because I actually KNOW people with this ability.

jose1

SO the first guy they show is Jose Marcus Aiella a young man in Puerto Rico who lives a simple life as a quiet man working at a TV repair shop. Quite simply the guy is super powered; he can conduct electricity, create enough electric heat to burn stuff and even create magnetic fields and store electric energy. But I have to tell you. I’ve seen something like this before.

My grand-uncle (that would be my grandmother’s brother) just had his 83rd birthday about 10 days ago, and he’s been repairing electrical appliances, like radios but especially TV sets, since he was a teenager. He can handle electricity. I’m currently renovated a house (see other parts of this blog) and so on occasion I’ll ask him how to wire or run electricity in the house, he’ll tell me, and guess what? I’ll do it and get my ass shocked! I’ll call him and tell him what happened and he’ll say oh HE can touch this or that thing but I can’t. I’ve seen him handle things a normal person can’t, I’ve seen electricity shoot at him and it not have any effect on him.

Back to Jose. So Jose’s mayor finds out about him and his first reaction is to get some kind of tourist attraction set up. Jose sort of recoils from this idea, but does decide to stage and extremely dangerous demonstration for his neighbors. I say this because I’m currently putting siding on my house and the ONLY section I haven’t done is where the 220 Volts are attached. That 220 (in Jose’s case 244) is pretty much the most lethal juice a normal citizen will have access to, after that you’d have to be in some non-residential location. But Jose survives. The scientists determine that his has essentially trained his body to withstand the juice. So nothing definitive except don’t YOU try it.

jfirejfire2jcar

The show also features a woman named Debbie in the UK who basically kills or changes things that function on electricity. She calls herself a “slider” a person who does this due to their emotions or state of mind.

debbie1debbi2

Now this story is also close to my heart. I had a girlfriend who knocked electrical things out. She didn’t believe me at first and for some reason interpreted her ability as me putting her down. She felt embarrassed and really tried to deny it, but after numerous situations she had to admit it. I first became aware of her “power” when I changed all her normal light bulbs to the energy saving compact fluorescent bulbs. Those things are supposed to last 7-10 years. But hers started going out. So I brought the bulbs back to my house and they worked in one of the light sockets. When she would visit my place she ALSO began to knock MY light bulbs out, my computers, my TV. I mean clearly things related to me caused a change in her emotions, but more importantly when she would leave my place the devices would start working again. I loaned her my truck to pick her daughter up from college. Truck comes back; headlight blown out. She gets out of my truck, I get in, the headlight comes back on. And so on.

Back to Debbie. They run a test and have her watch video of Jose, and she has an elevated electrical reading due to her excitement in watching Jose. There’s a comic book British superhero named Jenny Sparks that I’m reminded of…

deb-via-jose

Anyway here is a link to the My Shocking Story British website. WARNING; like some of the photos on this site you will see some hard to digest images. I suppose you could acclimate yourself by first reading my Half Man Half Tree story or my Woman with Giant Legs and Man with No Face stories. Here’s a story I just found last night about facial transplants.

frenchface